Replies to This Discussion

Permalink Reply by Wonder on March 10, 2012 at 7:28am

Thanks Nikki, for your support. :)

He is coming out of his shell a bit now. He was talking about it to his friends, they all suggested that he should just shave his head. This week even more hair fell out, you can really see the holes in the back of his head. I also went to see the principal, as he had noticed and wondered what was going on. there is another little girl in kindergarten with the same thing. When I told my son this, he was sad for her, because of how old she is. The principal told me it's ok for him to wear a hat if he wanted to.

I'm happy that he's talking more now about it, it wasn't good for him to keep it bottled up. Now if I could just find something that works.

We have been using the steroid and hydorcortisone creams. I am doing both, because the steroid is strong and I'm scared of the side effects. But it's not helping at the places he actually needs, since his hair is falling out all over. I would have to put cream all over his head.

I also read about Iodine, Has anyone heard or this? Have you tried it?

Permalink Reply by Wonder on March 13, 2012 at 11:34am

I brought him to the emergency this morning. They took some blood and scheduled an appointment for us with a pediatrician at the children's hospital. We go Monday and we will have the results of the blood tests. This makes me feel a bit better knowing at least they are checking other areas, that may be causing this. The back of his head is almost all bald now, and this morning we seen some balding spots in the front. This is so hard on him. At least now, hopefully he will getting some proper care, I really didn't like the first doctor he seen.

Permalink Reply by Wonder on April 10, 2012 at 11:46am

Well it has been about 2 months now, since his hair started falling out, he is now completely bald. We have also notice in the last week, that his eyebrows and arm pit hairs are also starting to thin out.

We saw the doctors at the children's hospital, all the blood tests where ok, nothing wrong. They made us an appointment with a dermatologist for June. The waiting is so long. He is looking great and doing great also. Everyone tells him how great he looks bald. :) He's got a very strong character I now he will be ok. Thanks to all who have replied. I appreciate it, it was frightening at first not knowing what was going on, and you all made me feel better. Thanks everyone. :)

Permalink Reply by Wonder on May 13, 2012 at 2:17pm

We went to the dermatologist, and I swear this guy is on something. He told my son that he's evolving, he really did. Instead of researching this condition, these dermatologist are just making things up. I was so upset, and I'm not going back EVER to see him. :(

Permalink Reply by Wonder on August 12, 2012 at 5:33pm

It has been awhile since I updated this. He is bald now, and very proud of it. The only thing that bothers him is that he no longer has eyebrows and eye lashes. All the hair on his body is gone. He's getting used to people looking at him, and it doesn't bother him. He even jokes to his friends that he is bald and has more girl friends (friends here) then they have. LOL He is doing great and looking great.

Here's a picture from his graduation.

Permalink Reply by Iris Mendez on February 6, 2013 at 10:23pm

Hi! my name is iris i have a 10 yr old we been dealing with this for around 2 yrs is been very hard for us too. I feel your pain cause till this day is been very hard for him to understand maybe is because he is only 10. i'm still trying to find an answer. he has not meet any boy with it i would love for him to meet some one.

Permalink Reply by Jen on February 7, 2013 at 10:38am

Hi,
my son was diagnosed almost 2 years ago. He is much younger so I don't have any sage advice regarding teens dealing with Alopecia except to let him talk about his feelings (if he wants to) and make your home a safe place where he can feel free to talk and for you to listen. Try not to show him your stress and sadness but try to be positive. THis is very hard but this is advice I've received from a dad whose son only had one arm. He said , "Send him out into the world and never pity him. Cry but never in his presence and don't let him see you feeling sorry for him" His son is a very successful , happy man who is getting married this year and I took his advice to heart.
I do cry but only after my son's in bed and he has asked me repeatedly why he doesn't have hair and has told me he wants to have hair like mine.
We are seeing small bits of regrowth..who knows if it will continue. But, just to give you some hope and reassurance...my dad had aloepcia and it came back (in the 1980's) and has not fallen out again since. It can happen you just never know with Alopecia.

We did not do the steroid creams for my son because i was worried about side effects too and i heard if you stop using it the hair falls out again. It's up to you to do what you feel comfortable with. It works for some but just wasn't for us.
Good Luck!!! It will get better!

Permalink Reply by jessiandjanis on February 11, 2013 at 6:46am

My daughter has AA, she 13. We found out last July and by August it was all gone. She is doing good with it. But sometimes I worry because she hides her feelings. She has some hair growth with some foams meds that the Dr gave her.

Permalink Reply by Gamerboy97 on May 23, 2013 at 5:39am

My son is 15 and his hair started falling out last year and he is now almost completely bald...he is not coping well...we are waiting for a Hair Piece being made, it;s a hair intigration system, if we call it a "wig" he gets really upset, he has become reclusive although with support from school he does go 3 days a week...am hoping once he gets his hair system he will be better able to cope...I try to encourage him to talk about it but he gets so sullen, I tried to push him too much about it although I know I had to encourage him I think I went too far and he just closed down on me, he is just REALLY embarrassed about it, he's now OK at home, (but even wears his hat in the house)but would stay in his room hiding away from the world if I let him....I found a local support group who have been Immense support from me, but mainly consists of women, he refuses to come along to any meets....but always asks plenty of questions about what I spoke about and what they said etc so I know he's interested and gets their support by default through me....I don;t know what to do or how to help he doesn;t want to see a counseller which is a hard thing to force.....all I'm doing is trying to be there for him and encourage him, but it's hard....not to mention the normal teeenage angst he can display (feel sometimes I walk on eggshells round him) bacause of what he's going through......I know he is healty and things could be worse, but he still has some really "down" days..................

Permalink Reply by Wonder on April 18, 2015 at 9:12am

It's been 3 years now that my son has had Alopecia.  He has adjusted very well, and loves his new look.  His friends where very important during the time he was going bald, they supported him and made him feel normal.  I think that was the most important thing that his friends did not change the way they treated him.  He has become the most confident person you can ever meet.  He is open about his Alopecia, when he sees someone starring, he explains to them what it is.  The most important thing, I have come to believe, is for a person with Alopecia to feel comfortable with their look, and everyone around them will also feel comfortable.  

My son is a volunteer for our city and has joined other groups as well, he is also on the student council in his school.  Here is an article that CBC did on him recently at the Volunteer Hamilton annual breakfast .

http://www.cbc.ca/news/canada/hamilton/news/hamilton-building-futur...

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