I was diagnosed just over 1 year ago. I can't tell you how surprised I was when the Dr came in and told me. On my previous appt, he was all positive..telling me that he was going to "cure me". I left with hope! Then to have it all smashed to pieces. At that time, my scalp burned really bad, to the point I would put cold compresses on my head. I found some help through some herbal oil treatments I found online. I now know there is no cure for Scarring Alopecia. I just have to come to terms with it. I'm in the "poor me" stage now...some times are better than others. With this type of alopecia, I'm not confident in just shaving it off, as the spots on my scalp are really red. So, 2 weeks ago, I bought a wig, but now regretting it. What I'm looking for is others with this type of alopecia..someone I can talk who is going through it too!

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I have scarring Alopecia also,Have had it for two years.My hair use to be short and I used perms products.Started the natural look now I have locks going on a year its thining in the middle but as of now,I can still cover it and every where else its growing...But it alwsys hurt and its stays red..whats best for pain magament..Help!!!!
Sorry forgot to say the itching also its so bad at times just wanna cry. I always wonder how long its gonna be before its gone..I just pray to God to get me through this

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