It's Hair Loss Support At Its Best™
Hi, My name is Rachel, I'm 21 and was just recently diagnosed with Alopecia Areata. I started noticing the hair loss in August. I was having several health issues at the time so we figured it was an underlying symptom. I had several lab work and blood tests done. My throid was normal, and nothing stood out except a Vitamin D defiancy. So, my doctor suggested Alopecia, and sent me to a dermatloogist who diagnosed me on the spot. I have lost quite a bit of hair, I was diagnosed with Areata but Universalis hasn't been ruled out. I lost all of my "private hair", and my eyelashes have recently started falling out. I still have some hair on my head, but not much. I cut my hair short, and most of it seems to be falling out at the front and working it's way back.
I try extremely hard to cover it up, I got an extreme bang cut, so I can comb all my hair forward and cover up my bald spot, but I don't know how much longer I'll be able too. I'm embrassed. I got made fun of at work, by a co-worker. Although, she doesn't know, it still really bothered me. I have told some friends, but I haven't advertised it by any means. I usually keep a lot of emotions to myself, but the other day I broke down and cried in my mom's arms. I was prescribed Clobetasol shampoo and solution and the shampoo just seems to make it worse, when I get out of the shower and brush me hair, I have handfuls of hair. I know, it sounds superficial, but I took great pride in my hair. I loved doing my hair up, and I used to have different feather extensions in all the time. Every piece of hair that falls out, I feel like I'm losing a piece of myself. I really don't know where to go from here. I have another appointment in a couple of weeks, and they're going to see if they want to send me to a hair loss specialist or not. But, I just feel like I'm sitting here, in the meantime, watching my hair fall out.
However, I am happy I have some answers, instead of playing the guessing and waiting game with the doctor's. I am trying to stay positive, and for the most part I am. But, I can't say that I have my days when looking in the mirror is an extraordinary task for me.
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Permalink Reply by Molly on February 4, 2012 at 10:08pm Ellen, wow...I have no other words. this was an amazing post. you've hit it out of the park. It's brought tears to my eyes.
Permalink Reply by Amanda on March 10, 2012 at 9:52pm Hey there Rachel! I am new here... today is my first day! This past week I was diagnosed with LPP (Lichen Planopilaris) which is a scarring alopecia. I was also diagnosed with a D deficiency a couple of years ago too. You seem like a really cool girl and I wanted you to know that you didn't deserve to be made fun of at work. I am so sorry that people can be so ignorant. I hope that you find the strength to get through this even though it feels like you never will.
I hope I can get through it. I am also wondering how I am going to hide my hair loss. Like you I seem to be able to get away with it for now. Should I start looking for wigs now? Should I shave my head? A part of me wants to rebel and shave my head and get a tattoo on the side of my head and smile like all of the beautiful bald women in the photos that I am finding on this site.
Rachel, stay positive! I feel that it is all I can do as well until I start the long and complicated regime my doctor has prescribed.
I hate it and love it that we are not alone in this. Thanks for sharing your story and keep smiling, cool girl!
Lindsay replied to kathy ferguson's discussion Horrible quote from HBO show "VEEP" last night© 2012 Created by Alopecia World.