Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 368
Latest Activity: 4 hours ago

Discussion Forum

Possible causes?

Started by Lara79. Last reply by Airam-FFA 4 hours ago. 44 Replies

Hi AllI'm Lara, 38 years old and I was diagnosed with FFA in September this year after noticing what appeared to be male pattern baldness starting around 8 months ago.My GP got the diagnosis wrong which led to a short delay in diagnosis but reading…Continue

Blepharitis AKA. eye lash issues

Started by Dragon&Fox. Last reply by Marytee 13 hours ago. 3 Replies

Anyone else suffering eye lash issues? Loss? Blepharitis?I have it bad!Continue

Tags: Eyelashes

Holistic approach

Started by Leni. Last reply by Batu Dec 4. 12 Replies

I'm 49 and just diagnosed with LP and FFA . I have always struggled with skin and stomach issues (hives, acne, IBS). About 8 years ago, 3 years after my third child I started having lots of issues. I had an Mirena IUD implanted and immediately felt…Continue

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Comment by Minter on Sunday

CurlyK, your happiness with your hair is bursting through in your post, what an awesome day for you! :-)

Comment by Norfolk Girl on December 4, 2016 at 3:18am
Hi Liz,

Thanks, I will contact her.
Comment by Marian on December 3, 2016 at 11:14pm
How did I miss that! Thanks for pointing me in the right direction.
Comment by Wyobalance on December 3, 2016 at 10:50pm

Check out the current Carf newsletter for an article on Mini Hair Pieces (can be used for sideburns)  www.carfintl.org

Comment by Marian on December 3, 2016 at 9:24pm
A couple of posters have said that they order hair and then cut it into sideburns. I am looking for details on how they go about this. Where do you order it from, what do you ask for and how did you determine how to cut it to match the missing hairline. It would be great to have a private photoshare area to do some "show and tell". As we are all so far flung in this big world. I have had extensions around the sides which has helped some but doesn't help with those missing sideburns. So happy for those of you who have found your solutions!
Comment by Liz on December 3, 2016 at 4:47pm

Hi Norfolk Girl

If you can get to Richmond I recommend Sara Woolhead. I had mine eyebrows tattooed there and I love them xx

Comment by Brenda, IL US on December 2, 2016 at 8:26pm
Thank you to Bu, Minter, and CurlyK. Best decision I've made in this 6 year journey. CurlyK I'm so happy for you. It's amazing how uplifting a compliment can be.
Comment by CurlyK on December 2, 2016 at 1:16pm

Brenda - sorry I'm late in responding but congrats on your new beautiful hair! I have to share a story from this morning...

I had to pick up someone from a surgical center this morning. When I checked at the front desk to pick the person up, the lady at the desk said "Wow! I LOVE your HAIR!" I smiled and said thank you. She then said "Is it natural?" which took me by surprise for a sec thinking she meant 'is it my own hair'...then I realized she was talking about the natural curl. :) I said, "Absolutely - all natural curls!" It made me feel so good inside!

So...said patient was hungry so we went to get breakfast. An older gentleman and his wife were behind us in line and he piped up and said "I really like your hair. It's fantastic!" I was like, wow, and this guy is standing there with his wife - awkward! BUT again I smiled and said 'thank you so much!'.

Yesterday, a faculty member and I passed in the hall and he said "I really like what you've done with your hair."

I felt like this was God's way of hugging me today. I haven't been complimented on my hair in at least a decade. I've been in hiding for four years since the receding and hair loss started. Today, my confidence is way up because now I'm not constantly thinking "whose looking at my hair?" and "can they see how bald I am?" or worrying about every little breeze that blows by.

For me, getting a bonded hair piece was the BEST decision I've made in regards to my FFA. I'm so grateful!!!

Comment by Norfolk Girl on December 2, 2016 at 11:31am
Hi, this message is regarding eyebrow tattooing and is really of my fellow UK sufferers. I had eyebrow tattoos done by Belinda Hayle two years ago and they are brilliant. I had them 'topped up' last year and have just finally got through to Belinda (after several fruitless attempts which included leaving messages. Anyway she has apparently stopped doing tattooing as the result of illness. Obviously this is unfortunate for her but I am somewhat miffed that they did not bother to contact existing customers who have a medical reason for having these tot tools done. She has some people she has trained up that she says are good but I just wondered if anyone in the U.K. Can recommend anyone else, particularly in either the south east or East Angelia.

Thanks everyone.
Comment by Minter on November 27, 2016 at 3:10am

Brenda, I'm a little late but want to say I'm happy for you and your new hair!  

 

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