Frontal Fibrosing Alopecia


Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 392
Latest Activity: 3 hours ago

Discussion Forum

When did/do you decide that you need helper hair?

Started by Minter. Last reply by turtles 3 hours ago. 20 Replies

Just curious as to those of you who wear "helper hair" or are contemplating it- at one point in this FFA hair loss did you decide to go for the wigs/hair pieces/etc.,,? Some days I look at my hair and think, I'm just being vain and silly, why I am…Continue


Started by mc. Last reply by MnM yesterday. 11 Replies

Hello and happy new year to all! I noticed my eyebrows fading about 7 years ago and went to dermatologist who showed me hair loss in the temples as well. (never even took notice) I'm using Plaquenil and Taculimus topical for 8 months. I went through…Continue

Hydrochlorothiazide or Microzide (Brand Name)

Started by Terri. Last reply by Joy yesterday. 22 Replies

Hello to all alopecia sufferers, I want to describe my case to see if anyone else has had the same experience.I started losing my eyebrow hair and some of the hair around my hairline, so I went to my Internal Medicine physician who referred me to a…Continue

Tags: Hydrochlorothiazide

Has anyone tried Monat?? Newly diagnosed with FFA

Started by LVL. Last reply by LVL on Sunday. 6 Replies

Hello. I am new to this group and I am grateful for all the support, information and advice. I am 33 years old, and was diagnosed a couple of months ago with FFA. I noticed my hair falling out a few years ago and my hairline receding. My doctor…Continue

Comment Wall


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Comment by Claire Julia on Sunday
I have had the interlace now for 6 weeks and I am getting used to it. However I still struggle every time i wash my hair. For the ladies who have the system where do you buy the shampoo and solvent from to remove the glue? Is it a reasonable price at Lucindas?
Comment by Classical Anne in NC mountains on March 18, 2017 at 3:39pm

Anne, I'm sorry you continue to have thyroid issues, beyond the norm.  If you have not used the Latisse in several months, have you seen any loss of lashes?  How far gone were yours when you began?  Mine were about 75% missing, about 8 to 10 short, thin, nearly colorless lashes.  I am thrilled that they are now naturally dark and curled [like my hair, what's left of it].  What style are you now wearing your hair that disguises the loss?  I've recently cut mine very short, which works fine at home and most errands.  But I never go to church, out to dinner, etc. without one of my wigs.

Comment by Anne Louise on March 17, 2017 at 10:23pm

Anne I miss you too in a virtual way I guess! :-) I like those applicators you linked to rather than the Latisse brushes. I haven't been using Latisse for several months, was last fall after panicking thinking my lashes were thinning and falling out. I just get tired of the maintenance! I'm a low maintenance gal (or just lazy I suppose) and have a hard enough time washing my face at night let alone all the creams and applications I've tried the past few years. I just had to change my thyroid meds and was very hypo for about 6 was awful and I also noticed more shedding. I'm back to normal thyroid wise now and am hoping my hairloss will slow down. I can still disguise it for now but not sure how much longer.


Comment by Classical Anne in NC mountains on March 17, 2017 at 5:11pm
Comment by Classical Anne in NC mountains on March 17, 2017 at 5:10pm

Anne Louise, I'm so glad you're still on here.  Strange to miss someone you've never met, but I HAVE missed you!  My vial did not come with a brush or any means of dispensing, other than squeeze, as it was designed for glaucoma drops IN the eye.  So I finally found a sort of micro Q-tip which has worked well.  I don't even really squeeze the vial, just turn it over and let a tiny drop out onto the tiny swab -- more than enough to 'paint' along the lash line, just like an eyeliner.  And it has also left a nicely faint eyeliner/eye shadow effect as a bonus.  But the goal and happy result is finally having eyelashes again.  Thanks for your response.  I'm glad I can cut back to 2 or 3 a week, so I can afford to continue.

Comment by Dyners on March 17, 2017 at 3:49pm
That sounds encouraging! The pictures online look good. I feel it could make such a difference if it turned out well. Thx MnM.
Comment by MnM on March 17, 2017 at 3:39pm
Hi Dyners,I had microblading done on my brows. They were very sparse and I had to draw them on every day. The woman I went to used both a soft tap and brush stroke technique. They turned great,they healed on the same schedule as someone without FFA and I love them! Such a confidence boost!
Comment by Dyners on March 17, 2017 at 3:27pm
Hi All! Just wondering if anyone has tried microblading for eyebrows? Wondering if it will just cause more inflammation or has results which would be worth it? Currently using Wunderbrow every day as at least it stays on until I wash it off at night with rest of my makeup.
Comment by Anne Louise on March 17, 2017 at 12:40pm

HI Classical Anne! My dermatologist said once you achieve the results you want, you only need to use 2-3x/week to maintain the lashes. I also found a helpful tip to extend the supply: place one drop in the cap and dip the brush drop is plenty for me for both eyes. In fact I brush whatever is remaining on my hairline! Not that I've noticed a difference in my hairline, but helps me to feel like I'm doing something in this helpless disease. Best to you and yours and happy St. Patrick's Day!

Comment by Classical Anne in NC mountains on March 17, 2017 at 12:03pm

LATISSE or CAREPROST [Canadian generic] for eyelashes.

I have not been into this forum in over a year, I'm afraid.  But since there are so many newer members, I'd like to ask the broader audience.  Those of you who may have tried one of these Rx to restore your eyelashes, did you find you needed to continue it after you got the hoped for response, to maintain it?  I started it just over 2 months ago, and had such a reassuring response.  Noticed a few new lashes within a couple weeks; and in one month had the full eyelashes of my younger days!  They grew in fairly thick, dark, long and curly.  I am thrilled!  But now, I don't know if I need to continue daily, or somewhat less, or not at all.  As you may know, it is extremely expensive in the U.S., and far from cheap [but so much less] in Canada, for a tiny vial.  Well worth it to my self-esteem, though.  Just don't want to risk losing now by overdoing or under-doing.  Anyone with any experience?


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