Frontal Fibrosing Alopecia


Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 183
Latest Activity: yesterday

Discussion Forum

Day One

Started by Gilly. Last reply by Murphy yesterday. 7 Replies

This afternoon I was diagnosed with FFA.  I have been told that there is nothing they can do to stop or cure it and that I will lose a lot of my hair.  I was and still am so confused, angry and distressed that I just don't know what to do or where…Continue

Any experiences with this book: The Autoimmune Epidemic or Cyclosporine A?

Started by Sas Holland. Last reply by Sas Holland on Wednesday. 11 Replies

Hi everyone, I'm Sas. I'm from Holland and I am 50 years old. (so forgive my sometimes poor English typing;)I was recently diagnosed with FFA when I went  for a concultation about  a hairstemcell transpant for my eyebrows at the hair-institute from…Continue

Tags: A, FFA, pre-menopausal, woman, Cyclosporine

Nutritional interventions for chronic inflammation

Started by Anne Louise. Last reply by MJ on Tuesday. 5 Replies

Hi Everyone,I went to a conference for health professionals last week given by Michael Lara, MD.  He studied at Stanford, Harvard and UCLA and lives in California.  The focus of the all day conference was how nutrition can impact chronic…Continue

Hydrochlorothiazide or Microzide (Brand Name)

Started by Terri. Last reply by Terri on Monday. 9 Replies

Hello to all alopecia sufferers, I want to describe my case to see if anyone else has had the same experience.I started losing my eyebrow hair and some of the hair around my hairline, so I went to my Internal Medicine physician who referred me to a…Continue

Tags: Hydrochlorothiazide

Comment Wall


You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by MJ yesterday
Liz, I am curious as to what brand of makeup you had been using?
Comment by Liz yesterday

Hi Sas. I have often wondered if it hereditary and it may well be. However we also spend many years living in the same house being exposed to the same toxins in our make up, cleaning products etc. We both used make up from the same company whose ingredients have since been banned. We both used home perms....So it could be hereditary but maybe not x

Comment by Sas Holland yesterday

Hi Liz, So you and your mother both have it, just as Rebecca. I had hoped it wasn't hereditary, but maybe it is then?

and thanks C, found  the page, the fact sheet is not there but I will ask Debs for it

Comment by Jules UK yesterday


Hi UK ladies, please remember to fill out the hairloss survey if you haven't already.  It closes on Friday.

Thanks for your support! x

Comment by jess yesterday
Does anyone know if you can get hairpieces like the bespoke ones mentioned on here in the United States?
Comment by Liz yesterday

Hi Sas. I have had FFA for at least the past 3 years and my mum has it too for the past 6-7 years. She is 74, I am 43 x

Comment by C yesterday

Sas - if you look above on this page on the discussion forum you will see View All at the bottom - click onto this and go to page 4 - you will see the sheet compiled by Debs there.

Comment by Sas Holland on Wednesday

hello C, I cannot find this info sheet from Debs, where do I have to look?

Comment by Sas Holland on Wednesday

Haha, hello C, no problem and yes I am very grateful for alm the good advices here. Ik have yet  not seen the sheet you mention from Debs, but I am going to look it up!

Comment by C on Wednesday

Hello again SAS - silly me - I should have read more about you before writing my last post !


Members (183)





Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World. It's hair loss support at its best!

© 2014   Created by Alopecia World.

Badges  |  Report an Issue  |  Terms of Service