Frontal Fibrosing Alopecia


Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 173
Latest Activity: 30 seconds ago

Discussion Forum

Crown extensions TOPETTES

Started by star. Last reply by sallylwess 31 seconds ago. 1 Reply

Hi was wondering if anyone else had come across these, or have one?Apparently they come in different shapes and sizes, and there is one that covers your hairline?Continue

What do we have in common?

Started by cubbieblue. Last reply by Sad in chicago 2 hours ago. 11 Replies

Hello Everyone. I've read most of your posts and in many of them I see similarities in our symptoms, activities and lifestyles, so I thought I would share some information about myself and my life with this illness. Maybe we will discover some…Continue

What type of hair overage do you use?

Started by Sad in chicago. Last reply by sallylwess Sep 8. 20 Replies

I have what you might call a wig let that I use and work with on a daily basis. It clips in. Looks great. But don't want to wear it to work out, walk the dog, hang at pool. What options do others use for activities?Also stopped using any drugs!…Continue

Wearing hairpieces/wigs

Started by Debs. Last reply by Debs Sep 2. 57 Replies

Hello LadiesIn January I cut my hair short, it is naturally curly, this enabled me to just fluff it up a bit and it covered y receeding hairline quite nicely. I have lost about 1 inch at the front hairline and 1.5 inches at my temples. I have grown…Continue

Comment Wall


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Comment by C 5 hours ago

Ladies - so far it looks like we have Deb, Pam, Catherine, Moira, Meme and hopefully Jules.  Norfolk Girl - if you change your mind please let me know - it would be lovely to meet you !  If I have missed anybody out, do shout ! x

Comment by C 8 hours ago

I will e mail Jules about the dates for our get together - she is still on holiday I think and missing this glorious weather we have here !!! I will keep posting on here and sorry if I appear to keep repeating as several ladies are logging on to this site intermittently.  So looking forward to seeing people !

Catherine has said the 16th is best for her - I will see if that's OK for Debs too x

Comment by Pam 16 hours ago

Any of the dates would suit me - Oct 15th, 16th or 17th. I`m easy! Just let me know what suits you best, so that I can book it in before other things crop up!




Comment by Catherine on Friday

Hi C,

The 16th would work best for me, if that suits you all too?

Thanks so much,


Comment by Meme on Friday

Hello C

Sorry, meant to write yesterday. Our trip has had to be cancelled so I can now make any of the dates.   Thank you C.


Comment by C on Thursday

Meme - have added the15th Oct to list of possible dates - any good for you ?

Comment by C on Thursday

Yes Catherine - by train from London is easy.  I will send you directions.  Can you make any of the dates I suggested ?  If people let me know which dates are possible then hopefully we will find one date that suits most.  I will invite you as a friend on this site to give you info. Thanks, C

Comment by Norfolk Girl on Thursday
Hi C, sorry but can't make those dates. Hope you have a good day.
Comment by Catherine on Thursday

Hi C, Thank you so much for organizing! Is it possible to reach you by train from London? I don't drive unfortunately...



Comment by C on Thursday

Hello ladies in the South East - I am trying to organise a get together as it's a while since we had one - I am suggesting the 15th,16th or 17th October if anyone is interested - close to Junction 2 M40 - please let me know if you can make any of these dates and I hope to see you !


Members (173)





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