Frontal Fibrosing Alopecia


Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 353
Latest Activity: on Sunday

Discussion Forum

What does really help? Regular medicines of alternative therapy?

Started by SmileNL. Last reply by Jeanne on Sunday. 23 Replies

Hi there,I'm new on the forum; I'm a Dutch woman and have FFA since 2014, but officially diagnosed in april 2015. I already lost quite some hear around the face, but still can hide it quite good (not totally..) with the rest of my hair. I searched…Continue

Platelet Rich Plasma Therapy

Started by April. Last reply by CurlyK on Saturday. 5 Replies

Has anyone tried this procedure? They draw your own blood, separate out the platelets using a centrifuge, then inject the platelets back into your scalp. Apparently it is used for all sorts of things like arthritis and injuries as well. I have been…Continue


Started by Will Be Healed. Last reply by Jacq Oct 18. 7 Replies

For those of you on finasteride, I am curious as to the side effects you have experienced, if any. In addition, have you seen hair growth as a result and if so, how long has it taken to grow back.I am currently on Plaquenil and have been on it for…Continue

Environmental factors?

Started by Isabel. Last reply by Minter Oct 17. 1 Reply

I live in a small town by the sea (around 30,000 people live here).I think there is a very high number of people that are affected by this condition in my town, given that I have seen quite a number of people that have it. In the last week alone I…Continue

Comment Wall


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Comment by Minter on Friday
Liz, your eyebrows look really nice! I have been tossing around getting my own done, but don't think I'm ready yet. Between you, DeniseC and Claire Julia, seems like it's all happening there in the UK! I'm heading over for a month in the beginning of November & stopping in at Guys hospital to give a blood sample for the FFA study and maybe I'll take a trip to Lucinda Ellory and see what this intralace is all about- it's easier for me to go to the one in London then here in America! :-/
Comment by DeniseC on Friday

That's great Liz. I am assuming it was the same one. She works at Lucinda Ellory part time, and got chatting to me - hence considering her. Will go with her now!

When I had my eyebrows done some years ago now (before I realised the extent of my hair loss and though the eyebrows were 'it') I looked, for the first few days, as if I were a pantomime dame. They were so dark and pronounced. But of course once they settled, they weren't like that at all.

Yep - I need them done again, have put it off for a long time, purely because I am so busy. But this has now inspired me. Make an appointment Denise!

Comment by Sad in chicago on Friday

Thanks everyone for letting me know about your eyebrows.  I am scheduled for Dec. 1  and am also very nervous, but looking forward to not drawing them in everyday!

Comment by Liz on Friday

Hi. Thank you all for your lovely comments about my eyebrows I'm really pleased with them. Sad in Chicago. I've now had them for 4 days. As MnM says they don't scab in the way that other wounds scab. If I look at them now closely I can't really see any scabbing. When I wash them the cotton pad is just a bit brown the same colour as the tattoo.I felt incredibly nervous before I had them done. I put it off for months but I'm due to start a new job so I thought I'd pluck up the courage to get them done and I'm so glad I did. Denise, it was a lady called Sarah who did them. She is based in London. She's a lovely lady who I felt at ease with xx

Comment by Claire Julia on Friday
Liz your eyebrows look great. I have had mine done and I am very pleased with the result.ive been going to a lady in East Sussex for the last 3 years. Her business is called Natural Enhancements.
Comment by MnM on Friday
They look great Liz!! I just had mine done in August and it was the best thing I ever did.

Sad in Chicago - it took about 7 days to feel normal again. The first few days they were really dark and swollen, scabbing started after a few days, but it wasn't like a wound scab, more of a crust that was the color of the dark Tatoo. Once that started coming off it was fine. The color set in, swelling went down and my confidence went UP! It was scary and I was worried I was going to hate them, but I'm so happy. I'm getting them touched up in January.
Comment by DeniseC on Thursday

Was it someone called Sarah who did your eyebrows? I was recommended to her, but haven't done anything about it. I had my eyebrows first tatooed about four years ago and they need redoing, but the original person is no longer around.

Comment by Bu US Illinois on Thursday
Liz, they look great! Congrats!
Comment by Sad in chicago on Thursday

Going for mine December 1st.  A little nervous.  How long before the scabbing fell off?  Also getting my other new custom piece next week.  Stay tuned............

Comment by sallylwess on Thursday
Liz, they are fabulous.

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