Replies to This Discussion

Permalink Reply by Lori Black on January 16, 2009 at 8:15pm

HI, almost got the spelling--universalis AU on this site as an abbreviation. I was diagnosed with alopecia areata or AA in 1984 at 12 yrs old. I was with and without hair for 9 yrs and then haired for 10yrs until 2000 after I gave birth to my first child then wham! AU for the last almost 9 yrs. How long have you had AU? Feel free to chat or respond any time! I'm on here frequently. Blessings to you!! Lori G

Permalink Reply by Kimmbe on October 12, 2017 at 4:29pm

Hey Lori! I was 12 in 1985 when I developed AA! We were going through it together! Wish we'd known one another then -- being a teenager in the 80's with hair loss, well, it's a new world now, thank goodness! I progressed to AU within a year and have been so ever since -- no change from pregnancy hormones, either, really. Interesting story!

Permalink Reply by Melinda Thiele on January 16, 2009 at 10:32pm

Hi Lori
I started with AA 30 years ago. Had some puberty related regrowth then 6 moths later lost it all and joined the AU club. Had hoped for regrowth with pregnancy but did not happen. I'm 38 now.
Glad you're here.
Melinda

Permalink Reply by Lori Black on January 30, 2009 at 9:42pm

Thanks Melinda, It is so comforting to finally feel like a part of a group. I have never known anyone with AA and have always felt left out. I have loving friends and family who know about it and don't care but they can't truly understand how it has felt over the years. God has truly helped me throughout my life to find ways to accept myself and realize I am accepted by HIM first and get through trying to gain acceptance from people at large. Thank you for your welcome and encouragement, you all are great!! Blessings!!! Lori

Permalink Reply by janetparsons on January 22, 2009 at 2:33pm

hi doris, i have AU. for 34 years now, my hair fell out all over my body when i was 19 years old,i have gone through all of the latest resarch for it, and was told by my dr, if my hair didn,t return in 7 years it wouldn,t BOY!! WAS HE RIGHT!i am still very conscious of yhis and have a hard time especially dating ,i am single, and i have run into SOME VERY IGNORANT PEOPLE, AND OF COURS SOME NICE ONES TOO, please feel free to correspond as often as u like i welcome any and all correspondecen, that being said I AM ALSO SUFFERING FROM FIBROMYLAGIA, WHICH I AWAS DIGANOSED WITH 8 YEARS AGO.

Permalink Reply by antonella on April 3, 2009 at 11:19am

Me too , had my eyebrows and eyeliner done in Beverly Hills California... This was so much help ... I search for a long time ,and Dominique Bossavy was highly recommended by a Celebrity Makeup artist ... and I am thrilled with the results ... She made my eyebrows look as if they've grown back, for the eyeliner she created a soft line and simulated lashes toward the external corner...
Dominique definitely made me look and feel better ... having this done in such a refine way makes my everyday so much better... I feel a boost in confidence ... that is priceless ...

Permalink Reply by Jennifer on January 25, 2009 at 12:03am

Hi, I have Alopecia Universalis for almost exactly one year now - had AA when I was a teenager & thirty years later, the big one, AU! Glad to chat with anyone who needs a boost.....

Permalink Reply by Jennifer on January 25, 2009 at 12:53am

ChasingOrion, I am a musician, too, and there are a lot of really creative people on this site who seem to have AU! I also miss my eyelashes the most & could live without the "pity looks" - oh well, you sound like you're dealing with all this incredibly well.

Permalink Reply by Pat on January 26, 2009 at 4:32am

Hi Janet, I've had AU for the last 20 years with some respite of a few years when I regrew all my hair...alas it vanished again but I've reconciled to the idea I'll be hairless until I'm old [er] maybe til I die. I wear wigs most of the time, it makes me feel better to cover my head. Sometimes I wish I could go without, but that's not me I'm afraid. I was married when I became AU. I don't know how I'd be dating someone new, so I can understand how you feel somewhat intimidated. I hope meeting others here like yourself will help.

Permalink Reply by Cherylnz on January 27, 2009 at 2:53pm

Hi Janet,
I have had Alopecia for 36 years (8 years old when it was first noticed) and have been AU for the last 34 years.
This is a great place to chat to others that know what its like.
Take care and keep smiling
Cheryl

Permalink Reply by Mari on January 29, 2009 at 1:15pm

Hey there! I have had AU for 21 yrs. Anything you need just let me know :o)

Permalink Reply by Tnabugg on April 2, 2009 at 11:35pm

This hit me at age 38. I am so glad for this site. I wish I had found this site 2 years ago.
This would of saved me a lot tears when I was going through this alone.

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