Replies to This Discussion

Permalink Reply by Christine on June 9, 2008 at 8:29pm

I have not had any treatments for over 15 years. I am hoping for a cure so others do not have to suffer as we have.

Permalink Reply by Carol on June 10, 2008 at 9:29am

I'm just wondering if there is anything you are doing to help find a cure? There is a registry you can join that will take some blood samples and use them for research. They study genetics and immunology mostly but they are making a break through in stem cell research which will hopefully help a lot. Scientists can grow human ears and human hair on a mouse's back too - some pretty freaky looking mice I'm sure! It's only a matter of time (unless, of course, you view alopecia as I do sometimes and see us as the future of evolution at which point everyone will lose their hair). Either way is good!

Permalink Reply by Christine on June 15, 2008 at 8:54pm

I didn't know about the registry until I joined Alopecia World. I will ask my doctor about it when I next see him. I have studied alot about natural health and healing. I feel that there can be a cure, we just have to find it. I have experimented with herbs and essential oils in the past and will be starting again soon. So in answer to your question, I am doing something, don't know if it will work, but I will never stop trying.

Permalink Reply by kastababy on June 11, 2008 at 11:17pm

My answer to that is an emphatic HELL NO!!

Why should I get my hopes up for something I know is not going to work, and spend money that could go in my gas tank (given the price gouging we go through to keep our cars on the road)?

I've learned a long time ago that this condition is going to either go into remission or not regardless of whether or not I take a treatment, so I would rather let nature take its course!!!

Permalink Reply by Carol on June 12, 2008 at 1:14pm

I can see eye to eye with you on this one! I haven't gone for treatments since I was 12. I'm just wondering YoKasta, did you get any regrowth during the time when you weren't on any meds? Every time I shave my head I seem to find another patch of hair. I know everyone's course is different but I'm just wondering what others with regrowth have seen. Not that I'd start taking meds or anything, it's obviously trying to work something out on its own, I'm just curious.

Permalink Reply by RENEE on June 12, 2008 at 10:34am

I have not had any treatment since I was 9 I do not see any new advances that would cause me to go back in search of treatment at this point in my life. I did register last year in a research study, but have not heard back anything from them.

Permalink Reply by Cat on June 14, 2008 at 12:01am

My situation is unique in that I never even saw a doctor about my hair loss until I was 18, even though my hair loss started at a young age (by 10 I had definitely thinned, but it didn't look bad to most people until I was 12). I had all the teasing and bullying, but none of the treatments. I just went to school with my scalp showing. The first time I heard the word "alopecia" was when I was 13 or 14 and one of my mother's friends was telling my mother that she thought I might have AA. I never heard the word spoken again until I was almost 20! I'd be a lot more at peace with this if it had been addressed when I was a child. As an adult, I know that my hair isn't coming back and that doesn't bother me, but I'm still seeking answers. I'm not sure if I have alopecia areata or what. I may never know. I will probably end my quest for answers in the near future, as it just depresses me.

Permalink Reply by Trina on June 26, 2008 at 9:03am

No,

I have not had treatments in at least 10 years as I have AU. If I would have had AA then I may have taken the time to do something. At this point the only thing that did work was prednisone and i was huge and as soon as the meds stopped so did the hair... But I do not knock anyone for doing what makes them happy..

Permalink Reply by Lori D. on June 26, 2008 at 12:24pm

My AA started when I was 6. At the time I only saw my pediatrician; even when it went to AU, we just took his word. A few years later, after we realized that his theory that it would grow back was not happening, we went to a hospital in Boston. Nothing much happened. No treatment at all. When I was in my thirties, I went to a dermatologist who did a biopsy, and blood tests..and tried the steroid shots. Personally, I believe that the sporadic and unpredictable growth that I've had, had more to do with my emotional health during different periods of my life. Currently I have facial hair, body hair, (minus the legs) and very thin, sparse growth on my scalp. Funnily enough, just recently, I've had growth on the top of my scalp which is very new for me.

Permalink Reply by Imbi on July 6, 2008 at 11:30am

Hi nice community!
I have had alopecia since I was 14. First time I shaved my hair I was 18 then with a treatment I got my hair back for a year and since then I have been bald. I stoped seeing my doctor a year after that and I have to say I felt good not taking any medicine because I got eating problems and lost weight. But last year after a summer I notesed that I have 5 small black spots on my head I didn´t care about it much but this winter I had problems with my skin and after we talked with my doctor we are now trying to see how my skin is acting to sun so from this summer I´m seeing my doctor again. I should say I´m AU but I can´t because all over my body there are spots with hair- on my legs, stomack, hands, my eye brows and eye lashes and right now my head is covered with small white hair plus with small black spot.
But I know I will stop taking medicine if it makes me sick as it did with when I was a teenager.

Permalink Reply by tamgirl on July 8, 2008 at 6:52am

Nope I dont go through treatment anymore.
Last time was ermmm over 10 years ago.

Maybe one day they find a cure, but i guess that will take a long time. I guess it will be the time when they can cure most auto immumesystem diseases.

Permalink Reply by willow on July 8, 2008 at 11:38am

I have not had treatments since 89. But, a few weeks ago, I was attending a dental appointment. My dentist is from Romania, a wonderful gentleman, and excellent doctor. He was telling me, there is a cure for alopecia. I said, not for people like me that have had it for so many years. He was saying that medical achievements in Europe is so much more advance than here, which I would highly agree. He said he'd check it out for me, as he's in Romania this month. I'm curious what he comes back to me with. Maybe I'll have something to share with all of you. In the meantime, just stay bald and beautiful. Blessings

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