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Ruxolitinib
I have been on Ruxolitinib (Jakafi) for 1 month now and have seen some small white hairs on scalp and arms. I have been universalis for about 12 years, I am 22. Dr. King prescribed it on a whim thinking it would not get covered but they did it. My dad is a doctor so I think his health insurance is just good like that. It is called Amerihealth.
I tried xeljanz for 8 months, saw a little regrowth but then it kind of stalled out and faded away. Jakafi seems to be responding much quicker. I am very interested to hear if anyone is on Jakafi or has been. The published studies are so small that its hard to get an accurate read on how the medication works.
Anyway I will keep everyone posted
Replies to This Discussion
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Permalink Reply by Return_life on
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Joey you are one of the very few on ruxolitinib... here everybody I talked to is on xeljanz. 50% are responding well and 50% so so I would say.
it is very important that u keep us posted on your regrowth. am on xeljanz for 6 months with good regrowth but not perfect
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Permalink Reply by Joey on
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I was on it about 7 months. Saw growth around 4 then stalled out and faded after that
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I had regrowth after 2 months
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Yeah I couldn't find much on here about jakafi, I seemed to have slipped through the insurance cracks. Growth has came much quicker than when taking xeljanz. I'll keep you guys updated. Tag me/ connect me with anyone on here taking jakafi (ruxolitinib) if you know them Thank you !
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Hey joey, keep us updated with your progress bud, it be interesting as you also took xeljanz to compare your results for non-responders.
Any update from Dr King if anything is getting approved by FDA for alopecia?
Kind regards
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I'll ask him when I see him in 2 weeks
On week 5 now and my head is filled with vellus hairs. Vellus hairs on my body and some thickening of fashial hair I had before treatment. Hoping the vellus hairs go dark soon. I will keep you all updated
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Thanks joey, have you got dr kings email address and contact number ? As I would love to make an appointment with him.
Kind regards
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Search Dr. King Yale dermatology. You should be able to find him that way
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Also, I'm not sure if you all are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.”
The public meeting is intended to allow FDA to obtain patients' perspectives on the impact of alopecia areata, including on daily life.FDA is also seeking patients' views on treatment approaches and decision factors taken into account when selecting a treatment
The more comments we submit the better... This is a great opportunity to have our voice heard!!!!
It is very easy to submit a comment, the person just need to follow the instruction on the Federal Register notice: https://www.federalregister.gov/documents/2017/06/23/2017-13194/pat...
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Hi gra. Why dont u start a thread a new one with details? Lets haave our voices heard!
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Permalink Reply by eleven11 on
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What kind of doctor prescribes Jakafi or Xeljanz? My dermatologist isn't on board, and, at this rate, I'm a month away from a completely bald head.
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