My girlfriend suffers from alopecia - how to be supportive and how to not let it bother me

Hello,

I saw a recent post here that was very similar by a man about how to best support his girlfriend whom he loved very much who is suffering from alopecia. Lucky for this man, it would seem his love and attraction to his girlfriend were not in question, and to that I say he is lucky and a good man. I too am in a similar situation, but perhaps my situation is not as clear cut because of things that I would call my own weaknesses.

My girlfriend, whom after 9 months I have come to love dearly, suffers from alopecia. She has had some very rough times in her life ever since she was a kid: she has lost many loved ones in shockingly, untimely ways, was able to overcome a terrible substance abuse issue (she's 7 years sober now, thankfully) and is also a breast cancer survivor, yet her positivity and strength is something that shines through her character. She practices "radical acceptance" and for someone like me who cal let things get me down, she can be an inspiration. Still, the impending reality of her steady hair loss is something that is devastating to her, and one can hardly blame her: she has been through so much in her life- and now this too? It's as if the universe is preventing her in every way possible from being able to feel "normal" about herself. I too think it's terribly unfair, but at the same time we have to count our blessings, even when they seems speckled amongst things that feel like curses.

When we first met, I attributed her thinning hair to the fact that she had gone through chemotherapy less than a year prior and that it was something that would "improve" but in time she shared with me the hard truth that this was something that was not going to get better- quite the opposite. At the time- I wasn't sure what to think. We had only been together for 3 or 4 months and my first reaction was fear and grave disappointment. I was even thinking that this was too much for me to handle and that I should look for the exit before it was too late, but I couldn't because of my feelings for her and that it would make me feel lower than low for that to be the reason for us breaking up when otherwise we fit so well. The superficial part of me then began to obsess about what she was going to look like was she started to lose all of her hair and what the heck I was going to do to support her when I myself wasn't sure what to do with my own feelings about it. It of course had a big impact my attraction to her which made me feel terrible and I can only imagine that she picked up on. I knew that I loved her and was wanted to be as supportive and always available, but I felt a little disingenuous because I clearly wasn't okay with it myself, at least not yet. What felt even more pathetic was that I as worrying what people would think of me because my girlfriend was losing her hair- of all of the things to thing about! It made me feel pretty low and I began to worry that I was incapable of being able to support and love her.

Over time, however, things started to change. After some point I stopped obsessing about it and tried to be okay with the reality of the situation, even though part of me felt that somehow this could be "fixed". Maybe that's still in my mind but somewhere, but the reality is that no, there isn't going to be a miracle cure. I talked to friends about it who I could trust to be discrete and compassionate and was surprised to find that they were if anything supportive of trying to make it work because they knew she made me happy. I know that I may still face the judgement of people who can't help themselves from seeing people as their physical identity and nothing else, not to mention those who objectify women across the board, but I realize I shouldn't spend two seconds thinking about those people. Still, I know what is coming. I still am there when she takes a shower and is a complete wreck when she sees the amount of hair is in the drain. I just want to hold her and tell her that it's going to be okay and that I am right here and will be. The thing is, I really want that to be the truth. I don't want there to be doubts in my mind. I don't want to succumb to some of the other stories I read about here where women report their husbands are no longer attracted to them because of the alopecia. For one, I don't want to lack that compassion, and second, I don't want to have those feelings of disdain or that I too am carrying some yoke that comes out in other passive aggressive ways. I want to be above it and just love her for her- hair or no hair or whatever comes of all of this.

While I feel like I am borrowing time now as she can still "pull it off" with the little hair she has left, the time will come when she is just going to have to start wearing a wig. I want- no, I NEED to be okay with this. I don't want to be saying one thing but feeling another. She deserves support, love and compassion, yes- but she also deserves honesty, but I don't think that includes me slogging on my petty problems regarding her ordeal onto her. That just seems selfish and completely out of scope with her burdens. However, the reality is that I need to get over it if we are to stay happy together. I can't be half in.

While I have shared a lot here, I guess I am not even really sure what I am asking for here. I guess I'd like to hear from other men who have gone through a similar situation and if and how they dealt with these sorts of feelings that could have affected their attraction towards the woman they loved or created some other complications in their dynamic. Even better, I would love to hear how others were able to conquer those feelings and put them aside for what really matters- having a loving relationship through the thick and thin- not letting something like alopecia or any other physical malady get in the way of that. I want to be the best I can for her and stop thinking about myself in this regard, and for this, I feel like I need help!

Thanks!

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If she wears a really ugly dress, do you love her any less?
If she gains/loses weight, do you love her any less?
The outside shell is what first attracts, but it's the gooey inside that you fall in love with. :)
My husband was very supportive and constantly tells me how much he loves me, which really helps, a lot.
It sounds as though you are very close to this woman and she, based on your words, sounds amazingly strong. I have a brother who suffers from a drug addiction so it always touches me to hear positive stories.... I'm the type of person who likes to personalize things; if you were my boyfriend and you couldn't get over my appearance I'd want you to talk to me about it but ultimately I'd say get the "F" outta my life. I'm 22 years old with universalis and my boyfriend and I would both say that we are beyond lucky to have each other. When my hair began falling out my bf and I had only been together for roughly 3 months and one of those months I was in a different country. I had a huge, legitimate, fear that he would leave me for it. I finally shared this fear with him and, us both being athletic, he said to me: would you leave me if I got fat?... Nobody is perfect, not on the inside or out, if you are superficially stuck on what is on her outside, that sounds deeper then the lack of her hair and I would suggest finding the route of that problem before starting over with someone else. I told you that if you were my bf I'd say get lost because it would piss me off if someone was wasting my time from finding a man who loves me for every flaw I have. I really do wish the best for you both and I hope I didn't sound harsh, you truly do sound like you care about her, I don't think you'd be asking for help if you didn't, but this is something I think you need to talk with her about.
You know its funny - my fiance and I have been together for four years. Two months before our engagement party I quickly lost every hair on my head. I wore a wig to our party with 200+ people. He said he never cared and still to this day I know he means for better or for worse ... But deep down I know it bothered him as much too. And you know what - that's ok. Because just like I went through it and had to accept it so did he. Its funny I actually just started wearing my very short hair as it's growing back and now he prefers me to wear the wig because he likes long hair. Well guess what - f him lol. I feel such a freedom without my wig. If you love her for her .. You don't care about her hair or what other people think. I think that's what most people worry about. I'm also a nurse and I see very sick people all the time .. It is the grave reality that one day you may be sick also or need someone to lean on and she will be there for you.
You are both so very right. I know full well that this is only about my shortcomings and fears and nothing about hers. I am a self-conscious person and that is my poison and my demons that I need to work out on my own. I never want her to feel like her situation or choices about her hair are something that she should be worrying what I think. As far as I am concerned, my role is to be supportive through the thick and the thin no
matter what she chooses. I just keep a good sense of humor
And make her feel secure. I just hate those ugly voices that slip past the gates and think superficial thoughts. It's
Such self-sabotage. I am never going to burden her with my feelings about something beyond her control- that is just selfish and mean. I just wish could always rise above those stupid fears for both of our sakes. We are pretty happy almost
always, but still three are self-destructive thoughts. I just want to be free of them so
I can just enjoy her with no strings attached so
A) I don't feel like a selfish and shallow person and b)I don't let such negativity stand in the way of our happiness. I guess
I just need to learn to give into the whole
love, be vulnerable, and remember what brought me here in the first place- her bright hard, her sharp sharp mind
and her beautiful capacity to love.

But the question is- would you accept her if she didn't want to wear a wig? I know I wear hats or scarves most of the time because wigs are genuinely uncomfortable and annoying. That's a personal choice, though. It must be hard for you but just like the person dealing with alopecia themselves, it takes a while to fully accept it and since it is happening while you guys are in a relationship, you guys both will be in a stage of learning to accept it for a while. But as a person who doesn't like to wear wigs and prefers hats/scarves... try to imagine yourself being okay with her wearing hats and scarves if she chooses that's what she wants. Wigs are hot and uncomfortable and she may not like them. It will help if you let her know that while it's hard for both of you, you will be there with or without hair or wigs. 

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