How do i stop thinking about my alopecia? Ive had universalis for 18 years and i cover it completely with an expensive wig and make-up. I dont tell anyone, and usually no one can ever tell.

Its on my mind all the time. It completely interferes with my life. I feel like a fake, and that no one knows the true me. I feel like no one will ever love the true me. I have nightmares about being discovered. I cant come out of my alopecia closet. Im so deep in there and its a lonely place to be.

Its been 18 years and im still not over it one bit...I feel like im waiting for my hair to grow so my real life can begin...right now im just playing life. just want to have it easy like everyone else. How can i stop the negative thoughts?

Please dont tell me to pray or anything like that...

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I don't know if this advice wlll help ... but I developed AU in a span of a few weeks about 9 years ago. It happened so suddenly and I was so angry! Angry because I had no intention of letting the hairloss interfer with my sense of self worth or self image. For a while, the anger gave me strength - I would go out bald and be brave. Eventually, though, I grew more upset and started wearing a wig full time and began to feel much like you describe. I was afraid to "come out".
The summers were the worst! So hot in a wig!

Anyway, eventually we moved and I was pregnant and my neighbour came over unexpectedly and saw me a scarf and then I realized I couldn't hide any longer. It was summer and I was pregnant and it was SO HOT wearing a wig, I finally said screw it - I'm going out without a wig. And that was 3 years ago and it was the best thing I ever did.

I"m not saying it's easy but once you put yourself out there ... just by logistics alone, you are forced to stop hiding! And it gets easier and easier. You don't need to go bald or wear a scarf to start ... just trying telling someone. Baby steps. IT does get easer. Pm if you like!


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