Replies to This Discussion

Permalink Reply by macdev on July 1, 2015 at 2:07am

hello

I'm a french Vet et have the same story with my 20 year old son....

• ▶ Reply

Permalink Reply by mom on July 1, 2015 at 2:16am

It's really sad as a parent to watch the anxiety ones child goes thru and there is nothing you can do to help. I cannot belief that with all the technology we have that there is still nothing that can be done to stop the hairloss.

I've watched my son go from an outgoing student to a recluse playing online games all day.

• ▶ Reply

Permalink Reply by macdev on July 1, 2015 at 7:37am

Il a commencé 12 années ... avec des hauts et des bas. Maintenant, il est plus difficile ..Mais .mon fils a fait de nombreux partis et néanmoins réussi ses études ... impossible de savoir comment il se sent. La science progresse en ce moment il semble, mais les traitements sont expérimentale et pas sans danger; Inhibiteurs de JAK tels que Xeljanx ne sont pas accessibles en France ..

• ▶ Reply

Permalink Reply by mom on July 1, 2015 at 9:30am

We live in South Africa, have been to specialists and general practitioners, nobody seems to specialise in alopecia here.

• ▶ Reply

Permalink Reply by Dominique Cleopatra on July 2, 2015 at 12:14am

Chére Marc, Je regret mon études français enable me to understand most of what you said, but not to respond adequately in your native tongue. Welcome to Alopecia World et Bon Chance! Although I am in the U.S., I agree that, for me, Xeljanz seems too dangerous, and I would rather live with alopecia than risk my health by undergoing an experimental and expensive treatment.

• ▶ Reply

Permalink Reply by katiegirl on July 1, 2015 at 5:29pm

I am a 25 female with total alopecia lost the majority of it within 2 months. Unfortuntaly I am newly diagnosed so not much advice to offer. It has been a truly devastating experience for me but I have to say everyday does get better. I am an RN who works with cancer patients and felt like this was the worst possible thing that could happen (although I know its not). My recommendation is to dermatologist shop and find someone who specializes. Although most treatments didn't work for me I have heard them work with many others. Best of luck to your son. Let him know he is not alone . telling him to join this support forum might offer some help for him.

• ▶ Reply

Permalink Reply by mom on July 2, 2015 at 2:15am

Thank you all for your comments, they are all really appreciated. I wish you all the very best. Everyday I try to get more insight into what my son is going thru. All I can do is love him and give him my total support in trying to live with this. xx

• ▶ Reply

Permalink Reply by macdev on July 5, 2015 at 6:52am

salut
En effet, l'immunosuppression (Xeljanx) peut conduire à des infections graves et probablement favoriser l'apparition de cancers. Toutefois, si ces molécules étaient sou forme de crème ou de pommade, il serait beaucoup moins dangereux ..

• ▶ Reply