Hello all,

I posted here about two years ago. Since then every single day my head has itched and I've lost hair. I still have one small spot of Alopecia Areata that has actually turned into a scar spot. 

I've lost hair from all over my body. The hair on my arms has thinned and my eyebrows are visibly thinner. I have to blow dry my hair to give it more fullness and make it look normal-ish (This is a big deal I'm a very active 24 year old guy).

The question I have when I visit the dermatologist (at a university hospital) is am I going to lose it all? She says that since I still have a good amount of hair that I shouldn't progress, but I am losing hair every day for over two years with little to no regrowth. Has anyone else had such painfully slow progression, and is this positive or bad?

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James,

I've been browsing through your post and what you have said is the exact same thing I've gone through.

I saw my first patch about 5 months ago. It was dime size in the back of my scalp caused by a dry itchy rash.

After it grew and I became concerned, I got steroid injected into it.  3 days later, my scalp was on fire and I saw diffuse hair loss at the front of my head.  To this day the hair loss continue.  What makes it worse is the hot burning sensation in my head as well as my entire body and I feel constantly tire.  Dermatologist also said the same thing yours did. 

It's been 2 months in after that initiate burning and my hair looks normal to the outside. My dad and mom look and can't find anything wrong.  The patch at the back of my head has now regrown some hair.  My hair still falling out gradually like yours. And the hotness and itchiness and sometimes burns comes and goes through the days/weeks. 

Do you feel tired too? Is your entire body also hot? Funny thing is I'm also schedule to see specialists at the Univeristy (Stanford). 

Did you follow the advice of the  user Matteo? How did it go?

Hey there.

I have the burning for sure. Constantly itching my head, my brows, my beard, arms or legs. Hair generally is on my hands after I itch.

I am rather tired all the time, don't know if this means it could have a hormonal basis, but the fact is that from the describers this is diffuse alopecia areata. I have hair thinner towards the base, eyebrow, eyelash, arm hair, beard hair, all shedding in a diffuse pattern. It is just a slow shed. I have tons of hair in the shower, on the pillow, and see hair during the day on my clothing. 

Because I had so much hair to begin with, it still looks like I have a head full of hair, just my brows look thinner than they used to, and I have to blow dry to make it look like I still have my full hair. (I work in sales and politics, so to me my hair is important.) I've attached a photo that show the progressive thinning.

They say that an indicator it will progress is how aggressive it is to begin with. This has not been aggressive, but it has been progressive.

Attachments:

Yeah you have exactly what I got. Do you have a tingly sensation? Like something is crawling on your skin?  I've also noticed dry white flakes (not dandruff). My skin is dry now and my eyes are veiny red.

Have you tried Matteo's recommendation of soaking your head in White wine or apple cider vinegar?

I tried that last night and my body got hot and I couldn't sleep. What a mistake.  Have you had any sleep issues?

No, I just sleep a lot. Feel like this has me depressed.

I am a decent looking 24 year old guy. The last thing I want to do is explain to girls why my hair and eyelashes are literally coming out when they run their hands through my hair.

Been on rogai now for a while and it hasn't helped nor do I think it is practical, we are losing hair all over our bodies and it's from An internal issue. I don't see a topical treatment offering any solace.

Is it possible this is not alopecia strata since it's such a slow shed? This has gone on almost three years for me. While I've thinned out considerably, an average person would look at me and not know I am balding. That's also the problem with this diffuse loss, even derms can think I'm crazy until they do pull test.

Anything improved yours? Anyone else with a very slow diffuse loss find any solutions?

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