Hi everyone, I know the essential oil craze can seem a bit out of control, but I read a published report with a relatively small group suffering from extensive AA, AU, AT treated with a combined jojoba grape seed oil with thyme Rosemary lavender and cedarwood essential oils, the findings were dramatic, (this was not an essential oil company claim) I've decided to give it a try. Just wondering if anyone else out there has tried with any good results? Of course I'll be posting if I have any. I have AU. Would love to hear from anyone, good or bad. I believe it took several months before results were seen and documented by dermatologist.

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Long time no contact....Hello...how is your Gripper been ?  Holding up well?  Hope you are doing great!!

Hi Lexi! Yes it's been a long time, I haven't been on AW for awhile, no reason really just busy with life. My gripper is holding up really well, I bought a second one but don't really like it as well, I wear the original everyday, and only occasionally wear the other, the cut just isn't right, I had my old hairdresser mess with it a little, it's better now, but may go back for a second time?!? How are you doing? Have you gotten any new wigs/styles/brands lately?

I add Rosemary to my shampoo, but I have not noticed too much.  I have seen good results from others though.  I am new to this so to be honest, I'm not sure.  I feel like my hair loss has slowed down, but I am not seeing much regrowth.  

I have tried the essential oils and for awhile I noticed less shedding, but no new regrowth unfortunately for me

how long did u use it?

For about 6 months. I rub the combo of oils on my scalp a few times a week at night and put a cap on overnight and then wash out in the morning. I a also take numerous supplements and believe the combo has helped with the shedding

Hi Suzie

I am newly diagnosed and wondered what supplements you are taking and if you feel that they have helped?  

I take Nature's Plus Ultra Hair Plus MSM vitamins, multi vitamin, biotin, evening primrose oil, flaxseed oil, fish oil, zinc, vitamin C and Biosil.   

Thanks, my local vitamin shop recommended the Nature's Plus and I started taking that a month ago. I also take a multi vitamin and fish oil.  I will look into taking the others as well. Do you feel this has helped you at all?  I am still shedding heavily despite the steroid injections.

This is my second bout with AA.  I had it first as a teenager over 30 years ago and my mother just took me to our family doctor.  He had no idea what it was.  After several months it started to come back on its own.  At the age of 26 I had my second child and developed RA soon afterward. (2nd autoimmune disease).  My hairdresser would tell me during the 30's that I had a small bald patch and I never worried about it cause it was covered and it would come and go.  My RA became so bad I had to be put on numerous biologics (Enbrel, Humira and finally Orencia).  It was after the Orencia that I started shedding like crazy and had numerous bald patches.  I'm not sure if the shedding has to run its course, or if the vitamins have slowed it down.  I just know I needed to do something and sometimes having a positive attitude also helps, so I would tell myself that these vitamins can't hurt me and can only help my hair.  The shedding/patches first started 2 years ago and I have been on my vitamin and oil regimen for about a year.  I still have my patches that have white hairs.  The hair I have is growing longer and is much softer and healthier, it's just much thinner from all of the shedding.  I also had steroid injections and it didn't do much for me at all, especially the shedding.

I hope this helps you.

Thanks, when I asked my Dr. his response was it could not hurt.  His only advice to me was get plenty of rest, avoid stress and pray. If it was only that easy to let go of the stress this has caused. Some days I am fine and others I feel like I go into panic mode and I am overwhelmed.  Going to see a custom wig specialist Monday so I can be somewhat prepared, right now I can cover this by pulling my hair back but the patch just keeps getting larger and I won't be able to cover it much longer. I was adopted so I have no idea what issues might run in my "family". The Dr. can't really tell me if this will stay patchy or turn into AT. Just running my hand down my hair in the morning nets a large handful.

I am so sorry!  Stress is definitely a factor!  And the hard part is when you see your hair coming out, it stresses you out even more!  I also was at the point where I looked into wigs, etc.  I even went to a place in Chicago (I live in the south suburbs) where he specialized in helping women with hair loss (especially cancer patients).  I tried on a wig and it just wasn't me so I left there crying!   There are some people who look great in wigs....maybe it just wasn't the right style or I didn't want to accept it!

This summer was hard for me because of the humidity.  My hair is so thin and fine that it just did nothing.  And when it was a windy day I was so worried that my patches would show, so I tried using the toppik hair fibers, which helped somewhat.

Only people who have this can truly understand what it's like! I have gone through bouts of depression and since I'm not on any medication for my RA I have had to deal with extreme pain as well as dealing with Menopause (I'm 51 and I know I am going through it).

I would do what the Dr. suggests and then some!  We have to be our own advocates.  I am truly trying everything! Supplements, oils, rubbing my fingernails together for 10 minutes a day (I read that somewhere that it stimulates your hair and blood flow), exercise, shampoos with no harmful ingredients. Next I am going to a holistic doctor, since this is autoimmune, I want to find out exactly what I can naturally do for it.

I wish you all the best.  Keep me informed.

 

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