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Permalink Reply by claire taylor on September 23, 2008 at 5:39pm

A few years ago I was in a Pub and saw a young guy (id say late 20s) he had know hair and NO EYEBROWS that was a dead giveaway it wasnt just male patterned baldness, havin a few bevvies in me i strolled up to him and asked him straight "do you have alopecia?" he gave me a funny look and said yeah why, I then told him so did i he looked confused as i had a wig on, so i moved my wig a bit to prove it!!! haha he was laughing and was saying WOW ive never met anyone with it before, haha we had a great night dancing and chatting (and i got a few drinks bought for me hehe hehe)
Never saw him again though
I think we should have a secert handshake haha
The situation i was in meeting a fellow alopecian was ok because we had both had a few drinks and were in a crowded pace where strangers chat, If i was in a supermarket and i saw a fellow alopecian with 3 kids running riot, beans in one hand and cat food in another and a loaf of bread balanced on there chin then NO i wouldnt go up to them and say hi do you have alopecia???
There is a time and a place, I personally woud love to meet fellow alopecians and would not mind at all someone approaching me.

I work at the local hospital one day i was in the oncology clinic, cancer patients come to have chemo, one lady had just had her first session of chemo and she was saying how worried she was about losing her hair, so i told her where i got my wigs from (she was shocked, she never realised it was a wig) which i hope made her feel better about wearing wigs i think people still think they look "wiggy" when in actual fact they look great and you dont have to style them,colour, WASH everyday, in fact if my hair does grow back im gonna shave it off again ha ha

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Permalink Reply by fiona on September 24, 2008 at 11:56am

i agree i think there is more alopecia about , either that or i just notice it more.
I am currently au and wear a wig and i would say 99% of people haven't got a clue about my alopecia unless i told them.
I don't as a rule speak to other people with alopecia ( unless i already know them lol) just because i feel that the only thing we would have in common would be our alopecia. They may be out with family or friends and maybe wouldnt want a complete stranger coming up to compare bald patches lol.

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Permalink Reply by JeffreySF on July 20, 2009 at 9:22pm

Hi Everybody,
I wasnt sure where to post this but this looks like a good spot.

So, Leo and I are at IKEA today and who do I see....A guy with AU. Probably 20 something years old. Leo and I both looked at each other and said "He has alopecia" So we are practically face to face but he wouldn't make eye contact. I passed by him again and gave a little hello gesture but he still wouldnt engage. I figured I tried but I didn't want to go any further and seem like a Stalker.
It was kinda fun for me.

Jeffrey

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Permalink Reply by Nancy Schmelzer on July 20, 2009 at 10:15pm

My daughter and I just met a wonderful family through this site. Her daughter and mine have alopecia. It was great to talk to someone in the same situation and I know my daughter appreciated the contact too. I have introduced myself to adults and teenagers who have alopecia and explained our situation. so far, fortunately, we have had success. The teenagers have been absolutely great to Lauren and the adults have been postive. So,I hope our success encourages people. As a parent it is so good for Lauren to have alopecia role models -to see that she is normal just like them.

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Permalink Reply by JeffreySF on September 14, 2009 at 7:22pm

Well it happened again....
I was at the gym in the locker room and right there a guy with AU right in front of me. We exchanged greetings but he didnt seem to want to engage in a disscussion. Maybe next time....

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